The night of fun and dancing also served another important purpose – raising more than $40,000 to help pay for clinical drug trials and research to find a cure for the rare disease Progeria.
The fundraiser’s main attraction was Carly Kudzia, who has the rare, fatal genetic disease that causes her to age rapidly, roughly at a rate of about eight to 10 years for every calendar year. There are barely 100 children known to be living with Progeria in the world and their average life expectancy is about 13 years.
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